I thought I would give an update on Sammy for my own records, if nothing else.
He had a fever of 102.5 the day after we took the casts off. If the casts were still on, I would have been concerned about possible infection, but everything looked good on his legs. I have no idea where he picked up whatever he had, but I was just relieved that no one else came down with it--especially Helene.
On Saturday, he was pretty out of it and vegged on the couch most of the day, but did make some walking attempts, albeit only very timidly and with the assistance of the furniture. His fever was still pretty high that day and he was so sad about it. I felt so badly for him...he finally gets his boots off and then he gets sick.
His fever was gone by Sunday morning, but I still kept him home from church because it had been less than 24 hours since his fever had gone away and I didn't want him getting anyone else sick.
He's been walking more and more this week, but he still can't keep his balance very well and prefers to hold someone's hand or hold onto something. The other issue that has come up is that he is drastically turning in his left foot while he walks. REALLY turning it in...it reminds me of how Kevin Spacey walked in
The Usual Suspects (great movie, BTW). I'm not sure if he is doing that to help his balance issue, but the turn in problem is pretty much the reason why we did this last surgery and it needs to be addressed ASAP.
As of today, in addition to turning in his left foot, he is still very unsteady on his feet, cannot do stairs or even maneuver a small curb without holding onto something, and walks extremely slow. He was so frustrated today while we played at the park and asked me "why am I so slow?" It just breaks my heart time and time again.
So, it's back to CHLA on Thursday for an evaluation and I already have a physical therapy appointment scheduled for Friday if needed. School starts in a month and I don't want him still having walking/balance issues when starting out at a brand new school. And don't even get me started on my school woes--they are a plenty these days, but I just can't deal with them right now.
And I've been passive-agressively potty training Hannah. It needs to be done before preschool starts, but it has been such a game and never-ending power struggle with her that I am just done with it--without ever "officially" starting. I think I just need to take the plunge and put her in underwear and tough it out for a day or two...or a week. I know she can DO it...she just would rather see me tear out my hair. That girl can dish out some serious sassiness.
Helene, while still my sweet and serene baby, has become so grouchy at night. It all starts around 8pm and nothing makes her happy. She'll fall asleep and then wake up 45 minutes later screaming. She never wakes up screaming during the day or in the middle of the night...only between the hours that the older kids are in bed until I finally go to bed. Maybe she's just trying to get me to go to bed before 1am.
I went to movies with my friend
Jean last Thursday night, and was gone from 9:15pm-12:30am (Harry Potter...long movie!) and Samuel said Helene screamed and cried the
entire time. I fed her before I left and left a little bit of breastmilk for Samuel to feed her if he needed it. When I finally got home, she was literally shaking from being so upset and had a scratchy voice from crying so hard. No clue what that was all about, and yet she STILL wouldn't go to sleep until after 1am. I thought for sure she would have passed out from exhaustion from all the crying the minute I took her to bed and nursed her, but nope. It was so unlike her. I felt so badly for Samuel--nothing worse than a crying screaming baby. I'm sure that's the last I get to go out without her for a long time.
Anyway, here's hoping that this coming week is better and that Sammy can make some progress with his walking.